The parents of a little girl who is going blind created a visual bucket list for her. Even though 5 year old Elizabeth “Lizzy” Myers doesn’t yet know it, she is losing her vision.
Her parents said that they will break the news to her when she gets older and can have a better understanding of the notion. However, until then, they are helping her see as many beautiful things as she can, even if this means they lose some sleep from time to time.
Christine Myers, the mother of the small girl said that she ran upstairs one day in order to wake the small girl up as there was an incredibly beautiful rainbow outside. Even though the little girl was scared at first, when her mother carrier her out to see it, she enjoyed it a lot and spent around 30 minutes watching the beautiful phenomenon. She said that it was the longest and most beautiful rainbow she saw in her life.
Lizzy has Usher Syndrome Type II, which is a very rare genetic disorder. The disorder is so rare, in fact, that only a single person in 17,000 is diagnosed with the disease in the United States. Children who are born with the disorder have retinitis pigmentosa and moderate to severe loss of hearing. Lizzy could become legally blind and will most likely lose her hearing. At the time, the little girls is wearing hearing aids.
Because the severity of her sight loss and the progression are uncertain, the parents of the 5 year old girl are determined to expose her to as much beauty as possible. At first they began with activities involving low light, as this is the ability that she will lose first. Her father said that they went to an observatory and watched the night sky and the stars and took small road trips in order to visit zoos and museums.
The media picked up the story and her family has heard from people across the world since then. A Turkish Airlines general manager even offered them tickets to go to any place they desire. The family accepted to go to Rome so that Lizzy can see the wonderful sculptures and art.
The family is Catholic so the trip will also have a spiritual nature to it. They hope they will be able to take Lizzy to see the Vatican.
The doctors said that the little girl’s story should come as a reminder to everyone that we should all stop and watch the beauty in the world, regardless of any difficulties we might encounter.
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torchie4269 says
Ugh this is heartbreaking but also inspiring. Good for them for coming up with so many great things for their daughter to do.